Saturday, April 26, 2025


 MY HEALTH STATUS IS NOT GOOD

I have become resistant to the strongest antibiotic available.  The VA would not allow for its proper use, which requires placement in a rehab facility, thereby causing the specialist to have to use a smaller dose, which can cause resistance to the Vancomycin.

It is scary while sitting next to a man who has been undergoing infusion therapy for 58 weeks.  So now I am on a new antibiotic, Daptomycin 500 mg, and a doubling of the Meropenem to 6 gm from 3.

After nearly 4 months since my ears were first drained, a culture was finally taken.  In part the delay was caused by the private care hearing doctor.  His office would not release his records until forced to, which is when we learned he never sent the drained fluid for a culture.  In fact, when I saw him 2 weeks ago, he said he decides on a culture based on the color of the fluid.  It is a cheap test.  That bizarre decision has cost me needless treatment and a waste of taxpayer money.

In two weeks or less, a decision will be made to put me in the hospital.  It is the only option left.  The problem is the VA refuses to accept the advice of the specialist.  

I do have Congressman Vicente Gonzalez investigating the matter.  It is bizarre.  Even after the supervisor of community care [they manage non VA doctors] was brought into the matter, nothing has changed.  The low-level clerks are not going to do their job.  They know they cannot be fired, where is Elon Musk when we need him? 

I am on a mush diet.  It has now been verified my throat is very narrow and the tongue is swollen.  My feet, ankles, and calves are swollen.  I am gaining water weight.  My fasting blood sugar, even on insulin, remains at 156, with non-fasting going over 200.  My nightly insulin is an 18, up from a 16.  

This crisis has to be managed from inside a hospital or rehab facility.  

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